Amanda Joost, Marshall’s mother and Pompe advocate, oversees all fundraising and advocacy efforts for Marshall’s Mountain.

If you have questions about Pompe Disease, are looking for a guest speaker, or would like to learn more about our organization, please contact us using the form below or connect on Facebook.

We welcome volunteers! If you would like to get involved, please send us a message.

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Amanda spoke to Defiance High School’s anatomy and physiology students about Pompe and other rare diseases.